About CSSs/NP, especially MCS and EHS…
At the end of 2019, I had food poisoning. The antibiotics I was given caused an overgrowth of a very aggressive intestinal bacterium, which led to severe weight loss. They managed to control the bacteria with more antibiotics, but then I became depressed. I combined psychotherapy with medication for depression, but it threw my body out of balance again, starting with my thyroid, and I developed pain throughout my body, extreme fatigue, insomnia, skin rashes, etc.
After much trial and error, at the end of 2021 I was diagnosed with several central sensitisation syndromes (CSSs), recently renamed as nociplastic pain (NP), the main ones being:
- Fibromyalgia (FM), a rare disease involving severe pain in various parts of the body, especially the limbs and hips.
- Myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS), a rare disease involving very high levels of fatigue that do not improve with sleep.
- Multiple chemical sensitivity (MCS), a rare disease involving a strong reaction of the body to chemicals (cleaning or personal hygiene products, smoke, etc.).
- Electromagnetic hypersensitivity (EHS), a rare disease involving a strong reaction of the body to electromagnetic fields (EMFs), including low frequency (electricity), but especially high frequency (Wi-Fi).
I was diagnosed at the Hospital Clínic from Barcelona, where Spain’s leading experts in the treatment of CSSs/NP are based.
These diseases affect a very high percentage of women (around 85% of patients are women) and have not yet been sufficiently researched.
There is no consensus on what causes these diseases, the cause of CSSs. One possible cause is exposure to toxins that act as endocrine disruptors. There may also be a genetic origin (in my case, three women on my father’s side of the family suffer from these CSSs). A third cause may be excessive stress (stress is also a toxin, and one of the worst). It is common for all three causes to converge, triggering the full range of symptoms, as was the case with me.
Unfortunately, there is still no treatment for these rare diseases. What there is unanimity on is the importance of: (1) avoiding exposure to chemicals and EMFs; and (2) detoxifying the body. That is why, in the second part of this tab, I focus on giving specific advice on this.
In the absence of treatment, it is important to raise awareness of these diseases to help those of us who suffer from them feel less misunderstood and to encourage research.
That is why the work carried out by associations is so important. I am a member of Electro and Chemical Sensitive People for the Right to Health (EQSDS), an association founded in 2012. EQSDS is in turn part of CONFESQ, an umbrella confederation that brings together associations of all kinds (municipal, provincial, regional and national) of people with our four main illnesses, the ones I listed above.
To support people with MCS and EHS who are still professionally active, CONFESQ published a Green Paper on workplace adaptation in autumn 2025, a book that helps to understand both conditions (please find here an unofficial translation into English done with DeepL).
It would be a dream to have white zones in Spain, as there are in other EU countries, areas completely free of EMFs, where people with EHS could live, but they do not yet exist.
The only thing that helps me when I have flare-ups of my illnesses is to stay in bed, fast, and let time pass, trying to stay calm, without putting pressure on myself for anything, or for any reason… As I am fortunate and blessed to be retired and have a pension, if I cannot do anything, if I cannot move, then I do nothing and I do not move… It is a matter of accepting the new reality that forces me to have very, very limited physical activity and almost no socialisation, for the reasons I explain below.